{"id":6915,"date":"2023-09-20T13:38:50","date_gmt":"2023-09-20T13:38:50","guid":{"rendered":"https:\/\/www.dcberne.com\/?p=6915"},"modified":"2023-10-10T12:55:39","modified_gmt":"2023-10-10T12:55:39","slug":"newsletter-patient-and-public-involvement","status":"publish","type":"post","link":"https:\/\/www.dcberne.com\/en\/newsletter-patient-and-public-involvement\/","title":{"rendered":"DCB Newsletter #11\/23 \u2013 Patient and Public Involvement"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;1px||0px||false|false&#8221; custom_margin_tablet=&#8221;1px||0px||false|false&#8221; custom_margin_phone=&#8221;3px||||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; border_width_top=&#8221;0.5px&#8221; border_color_top=&#8221;#505358&#8243; border_width_bottom=&#8221;0.5px&#8221; border_color_bottom=&#8221;#505358&#8243; 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custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_post_title title=&#8221;off&#8221; author=&#8221;off&#8221; date=&#8221;off&#8221; comments=&#8221;off&#8221; featured_image=&#8221;off&#8221; module_id=&#8221;meta-new&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; title_font=&#8221;Avant Regular||||||||&#8221; title_text_color=&#8221;#000000&#8243; title_font_size=&#8221;64px&#8221; title_line_height=&#8221;70px&#8221; meta_font=&#8221;Calibri Regular||||||||&#8221; meta_text_color=&#8221;RGBA(255,255,255,0)&#8221; meta_font_size=&#8221;10px&#8221; meta_line_height=&#8221;16px&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||20px||false|false&#8221; custom_css_post_meta=&#8221;text-transform: uppercase;&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_post_title][et_pb_post_title author=&#8221;off&#8221; date_format=&#8221;j \u00b7 M \u00b7 Y&#8221; categories=&#8221;off&#8221; comments=&#8221;off&#8221; featured_image=&#8221;off&#8221; _builder_version=&#8221;4.19.5&#8243; _module_preset=&#8221;default&#8221; title_font=&#8221;Avant Regular||||||||&#8221; title_text_color=&#8221;#000000&#8243; title_font_size=&#8221;64px&#8221; title_line_height=&#8221;70px&#8221; meta_font=&#8221;Avant Regular||||||||&#8221; meta_text_color=&#8221;#000000&#8243; meta_font_size=&#8221;14px&#8221; meta_line_height=&#8221;24px&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||16px||false|false&#8221; title_font_size_tablet=&#8221;&#8221; title_font_size_phone=&#8221;42px&#8221; title_font_size_last_edited=&#8221;on|phone&#8221; title_line_height_tablet=&#8221;&#8221; title_line_height_phone=&#8221;48px&#8221; title_line_height_last_edited=&#8221;on|phone&#8221; custom_css_post_meta=&#8221;text-transform: uppercase;&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_post_title][et_pb_text _builder_version=&#8221;4.22.2&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Avant Regular||||||||&#8221; text_text_color=&#8221;#000000&#8243; text_font_size=&#8221;20px&#8221; text_line_height=&#8221;24px&#8221; link_text_color=&#8221;#89BBE5&#8243; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<p id=\"ember569\" class=\"ember-view reader-content-blocks__paragraph\">Dear Community &#8211;\u00a0We are happy to provide you with a new episode of our newsletter series called &#8220;INSIDE DCB&#8221; &#8211; this time with a focus on patient and public involvement (PPI)!<\/p>\n<p id=\"ember571\" class=\"ember-view reader-content-blocks__paragraph\">At DCB, we are very passionate about patient- and user-centric research and product development. It is important to us to involve those living with diabetes at every step of the way. In this newsletter, read more about how we do that and how you yourself can get involved!<\/p>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/www.dcberne.com\/wp-content\/uploads\/2022\/12\/image-1.png&#8221; title_text=&#8221;Newsletter for Website (2)&#8221; _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/www.dcberne.com\/wp-content\/uploads\/2023\/09\/Newsletter-for-Website-2.jpg&#8221; height=&#8221;300px&#8221; custom_margin=&#8221;64px||0px||false|false&#8221; custom_margin_tablet=&#8221;&#8221; custom_margin_phone=&#8221;48px||||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||40px||false|false&#8221; custom_padding_tablet=&#8221;0px||40px||false|false&#8221; custom_padding_phone=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;3_5,2_5&#8243; module_id=&#8221;post-content&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;3_5&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text ul_item_indent=&#8221;20px&#8221; ol_item_indent=&#8221;20px&#8221; module_id=&#8221;post-body&#8221; _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Calibri Regular||||||||&#8221; text_text_color=&#8221;#505358&#8243; text_font_size=&#8221;18px&#8221; text_line_height=&#8221;24px&#8221; link_font=&#8221;||||on|||#89BBE5|&#8221; link_text_color=&#8221;#89BBE5&#8243; custom_margin=&#8221;0px||80px||false|false&#8221; custom_margin_tablet=&#8221;0px||80px||false|false&#8221; custom_margin_phone=&#8221;||48px||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p id=\"ember573\" class=\"ember-view reader-content-blocks__paragraph\"><strong>Patient and public involvement<\/strong><span>\u00a0<\/span>is defined as \u201cresearch done with or by patients and the public, not to, about or for them. It is about working collaboratively with patients and the public and sharing decision-making\u201d [1]. It is not only about engaging the public to focus on awareness, nor is it about having patients merely participate in clinical studies. \u00a0<\/p>\n<p id=\"ember574\" class=\"ember-view reader-content-blocks__paragraph\">At DCB, we aim to involve people living with diabetes at every step of the way and in all our processes \u2013 whether that be in the mentoring of our annual DCB Open Innovation Challenge, in our clinical research studies or in other decision processes.\u00a0<\/p>\n<p id=\"ember575\" class=\"ember-view reader-content-blocks__paragraph\">PPI offers various benefits for researchers and companies. Most importantly, people living with a condition often know best which topics from their life remain under-researched and under-represented. Especially for translational research, which focuses on transferring scientific research into innovative product development, it can also uncover unmet needs that still need solutions. Altogether, involving those living with a condition in research processes can result in more impact overall.\u00a0<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Avant Regular||||||||&#8221; text_text_color=&#8221;#000000&#8243; text_font_size=&#8221;30px&#8221; text_line_height=&#8221;36px&#8221; link_font=&#8221;||||on|||#89BBE5|&#8221; link_text_color=&#8221;#89BBE5&#8243; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||16px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>DCB Patient Leaders<\/h3>\n<p>[\/et_pb_text][et_pb_text ul_item_indent=&#8221;20px&#8221; ol_item_indent=&#8221;20px&#8221; module_id=&#8221;post-body&#8221; _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Calibri Regular||||||||&#8221; text_text_color=&#8221;#505358&#8243; text_font_size=&#8221;18px&#8221; text_line_height=&#8221;24px&#8221; link_font=&#8221;||||on|||#89BBE5|&#8221; link_text_color=&#8221;#89BBE5&#8243; custom_margin=&#8221;0px||80px||false|false&#8221; custom_margin_tablet=&#8221;0px||80px||false|false&#8221; custom_margin_phone=&#8221;||48px||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span>As part of our efforts to involve the diabetes community in our decisions and activities, we established a board of\u00a0<\/span><a href=\"https:\/\/www.dcberne.com\/en\/community\/\">DCB patient leaders<\/a><span>\u00a0roughly two years ago. Our patient leaders represent lived diabetes experience in different parts of the world \u2013 from Switzerland all the way to Singapore. We greatly value the voices of those living with diabetes and believe that all processes should involve those with lived experience. Because after all, research and product development is being done because of and for those living with diabetes! To make it truly user-centric and impactful, we need to properly involve those with a sound judgment and lived experience of it.\u00a0<\/span><\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.22.2&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Avant Regular||||||||&#8221; text_text_color=&#8221;#000000&#8243; text_font_size=&#8221;30px&#8221; text_line_height=&#8221;36px&#8221; link_font=&#8221;||||on|||#89BBE5|&#8221; link_text_color=&#8221;#89BBE5&#8243; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||16px||false|false&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<h3>Patient and Public Involvement Event at DCB<\/h3>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/www.dcberne.com\/wp-content\/uploads\/2023\/09\/1693820796727.jpeg&#8221; title_text=&#8221;1693820796727&#8243; _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||58px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p id=\"ember580\" class=\"ember-view reader-content-blocks__paragraph\">Just recently, we hosted an event for patient and public involvement at our premises in Berne. In cooperation with the University of Bern and the Department of Diabetes, Endocrinology, Nutritional Medicine and Metabolism (UDEM) at the University Hospital of Bern, we invited participants of our past research studies, people living with diabetes, researchers and the DCB team. Together, we all discussed past study outcomes as well as visions for future patient and public involvement. \u00a0<\/p>\n<p id=\"ember581\" class=\"ember-view reader-content-blocks__paragraph\">\u00a0We live and breathe patient and public involvement at DCB and we are always on the hunt for new innovative methods and activities. If you are interested or want to contribute your thoughts, please don\u2019t hesitate to reach out and<span>\u00a0<\/span><a href=\"https:\/\/www.dcberne.com\/get-involved\/\">get involved<\/a><span>\u00a0<\/span>with us!\u00a0\u00a0<\/p>\n<p id=\"ember582\" class=\"ember-view reader-content-blocks__paragraph\">\n<p id=\"ember583\" class=\"ember-view reader-content-blocks__paragraph\"><em>Thanks so much for reading and we&#8217;ll provide you with the next episode of this series soon!<\/em>\u202f\u00a0<\/p>\n<p>[\/et_pb_text][et_pb_divider _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_divider][et_pb_text _builder_version=&#8221;4.22.1&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span>[1]\u00a0<\/span><em>What is patient and public involvement?<\/em><span>\u202f NIHR Oxford Biomedical Research Centre.\u202f<\/span><a href=\"https:\/\/oxfordbrc.nihr.ac.uk\/ppi\/ppi-researcher-guidance\/what-is-patient-and-public-involvement\/\">https:\/\/oxfordbrc.nihr.ac.uk\/ppi\/ppi-researcher-guidance\/what-is-patient-and-public-involvement\/<\/a><span>\u00a0<\/span><\/p>\n<p>[\/et_pb_text][et_pb_blurb use_icon=&#8221;on&#8221; font_icon=&#8221;&#xe09d;||divi||400&#8243; icon_color=&#8221;#FFFFFF&#8221; image_icon_background_color=&#8221;#89BBE5&#8243; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;16px&#8221; _builder_version=&#8221;4.21.0&#8243; _module_preset=&#8221;default&#8221; body_text_color=&#8221;#000000&#8243; body_font_size=&#8221;16px&#8221; body_line_height=&#8221;22px&#8221; body_link_text_color=&#8221;#89BBE5&#8243; background_color=&#8221;#FAFAFA&#8221; image_icon_custom_padding=&#8221;5px|5px|5px|5px|false|false&#8221; custom_margin=&#8221;0px|0px|80px|0px|false|false&#8221; custom_margin_tablet=&#8221;0px|0px|80px|0px|false|false&#8221; custom_margin_phone=&#8221;||48px||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_css_blurb_content=&#8221;max-width: 100% !important;||padding: 16px;&#8221; border_radii_image=&#8221;on|100px|100px|100px|100px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span>This post was previously published in Linkedin. <a href=\"https:\/\/www.linkedin.com\/pulse\/dcb-newsletter-823-inside-understanding-regulatory-landscape\/\">Click here<\/a> to see the original publication.<\/span><\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][et_pb_column type=&#8221;2_5&#8243; 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custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Avant Regular||||||||&#8221; text_text_color=&#8221;#000000&#8243; text_font_size=&#8221;42px&#8221; text_line_height=&#8221;48px&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||40px||false|false&#8221; custom_padding_tablet=&#8221;0px||40px||false|false&#8221; custom_padding_phone=&#8221;||16px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>More recent news<\/p>\n<p>[\/et_pb_text][et_pb_blog fullwidth=&#8221;off&#8221; posts_number=&#8221;3&#8243; include_categories=&#8221;110&#8243; meta_date=&#8221;j \u00b7 M \u00b7 Y&#8221; show_thumbnail=&#8221;off&#8221; 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&#8211; this time with a focus on patient and public involvement (PPI)! At DCB, we are very passionate about patient- and user-centric research and product development. It is important to us to involve those living with [&hellip;]<\/p>\n","protected":false},"author":7,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"give_campaign_id":0,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[110],"tags":[],"class_list":["post-6915","post","type-post","status-publish","format-standard","hentry","category-linkedin"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>DCB Newsletter #11\/23 \u2013 Patient and Public Involvement - Diabetes Center Berne<\/title>\n<meta name=\"description\" content=\"Patient and public involvement is one of the core principles at DCB. 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